Saturday, April 28, 2018

I Oughta Be in Pictures? For a Cause as Great as This, of Course!

Before we begin...to all my besties, acquaintances, and anyone else who knows me as a proud native son of Michigan, I apologize in advance. But please allow me to explain.

What you're about to see on this embedded video may give you pause to believe I have turned my back –– and the sweatshirt that covers it –– on the Great Lakes State. Nothing could be further from correct. I was born in Muskegon, raised in Spring Lake, summered in Grand Haven, matriculated in Holland, and spent the majority of my adult life in Detroit. The blood that courses through my veins is Pure Michigan.

However, in the video you're about to click, you will see Jim McFarlin clad in (I can hardly bring myself to write it) a University of Illinois hoodie. While it's true I have lived outside of Chicago for the better part of a decade, I assure you I have not crossed over to the dark side of the Big Ten Conference.



This was clearly a "when in Rome" –– or in this case, Champaign-Urbana –– situation.

You see, I am a member of a committee called Life Goes On Champaign, an outgrowth of legendary Illinois Secretary of State Jesse White and his passion to increase the number of Land of Lincoln residents who register to be organ and tissue donors. White's obsession was fueled when his sister received a life-saving kidney transplant many years ago. And since I received the identical miraculous gift in 2011, I'm a big fan of the effort myself.

(For more information, go to LifeGoesOn.com.)

Since April is Donate Life Month (you did know that, right?), White and his people unveiled a new ad campaign and video highlighting the fact that as of January, 16- and 17-year-olds are permitted to register as donors in the state of Illinois.

Liz Hager, White's wondrous right-hand woman and our committee chair, connected with a delightful University of Illinois undergrad named Bridgette Rasmussen who volunteered to help produce a separate public service announcement on behalf of Illinois Student Government, specifically for the U of I Union. It would alternate with the official Life Goes On PSA and air continuously throughout the Union, to be seen by thousands of collegians.

Since I am one of the few men on the committee, and by far the biggest ham in the room, I happily volunteered to participate.

Because it was going to be shown exclusively on campus, I decided to dress the part for the video shoot. All right, yes, I was sucking up...but for a good cause!

I donned my orange-and-blue-on-gray Illinois hoodie –– the only piece of Illini apparel I possess, and I only wear it to work out, I swear! –– and drove to the university's creative services office for the taping. I would be joined by my fellow committee members, Lauri Umbarger and Robyn Deterding.

Now let me say at this point that I enjoy many things about growing older gracefully, but total loss of memory is not one of them. I elected to run a few quick errands before driving to the U of I studio, ensuring I would arrive early for our 4 o'clock taping.

That is, until I casually glanced at my calendar while stopped at a red light. The taping was set for 3 o'clock! I forgot! Instead of being comfortably early, I stood to be nearly an hour late!

I raced to campus, found a parking place several blocks away –– looking for parking at a major university in mid-afternoon can bring a grown man to tears –– then ran to the studio, arriving flustered and out of breath. My only saving grace was, as I knew from experience and hoped in this instance, that video shoots almost never start on time.

Thankfully, I was right. And by the grace of God I was scheduled to be the last person taped, which gave me time to right myself. The script, loaded onto a TelePrompTer, was simple and straightforward, which meant I could read it slowly and give it some sincerity. I wasn't half bad, if I say so myself, but you be the judge.

Apparently, the video crew thought so. When we were finished, the director stared at me and asked, "Have...you...done this before?" I explained that yes, I used to do some voiceover work in Detroit and hosted shows both on TV and radio.

He asked for my business card.

Wouldn't it be a hoot if volunteering to play a part for a cause I feel so strongly about led to getting some paying work as well? Talk about paying it forward!

But hey, like they say: Life Goes On.

Saturday, December 2, 2017

Make a List of All You Do. The Results Might Surprise Even You!

Micheal and Me: With the Amazing Micheal Turner
CHICAGO – Recently I was here to attend the annual meeting of The Renal Network ESRD Network 10 Board of Directors, on which I am proud to serve as a patient representative.

The Renal Network is a not-for-profit organization tasked with monitoring the quality of dialysis care in Network 10, which covers the state of Illinois. (There are 18 such networks nationwide, all under the direction of the Centers for Medicare and Medicaid Services (CMS), responsible for every U.S. state, territory, and the District of Columbia.) I've been affiliated with Network 10 in one form or another almost since my kidney disease and I moved to Illinois in 2009.

I am one of two patient reps on the board. The other is a gentleman named Micheal Turner, of whom my admiration knows no bounds. He's the Real Deal, a true believer, a warrior for patients' rights. Sometimes I'm almost jealous of Micheal because he still has such an active, caring, hands-on role in his dialysis clinic. He rallies and organizes his fellow in-center hemodialysis  patients, acts as liaison between patients and staff, follows up on grievances.

Then again, being as fully engaged as Micheal Turner means I probably would be on dialysis again.

Never mind. You go, Micheal. 

Typically speaking, neither he nor I get to do a lot of talking at these board meetings. It's not that we aren't valued, as has been the case at some other meetings I've attended where nephrologists, dialysis nurses and other health professionals look at patients as a necessary evil, or at worst, an annoyance to be patronized. It's just that Network 10 has undergone some major structural changes the past few years and much of our time has been spent in organizational details, rewriting bylaws, that kind of thing.

Not this time. A few days before the meeting, our executive director, Bridget Carson, emailed me and said she would like to begin the agenda with a "patient rep update." It would be an opportunity to introduce the new board members – and many of the old ones, I'd wager – to who we are and our activities outside the boardroom.

And give us a chance to speak, too.

Open a Magazine and See Your Face? Cool, But Creepy. 
So the night before, in my Chicago hotel room, two extraordinary things happened. I picked up the latest copy of CS (Chicago Social) magazine, one of those glossy local publications found in every Windy City hotel room and one for which I write, and much to my surprise found my little brown mug staring back at me from the contributors' page! Magazine deadlines are so far in advance that I'd forgotten I had even written a story for that issue. That'll wake you right up!

The other thing was, now completely awake in my cool, quiet room, I actually had time to think about all my kidney-related activities and jot them down in advance of my meeting moment.

In addition to sitting on the Network 10 Board of Directors:

• I'm a "subject matter expert" in the area of patient mental health for the Florida-based National Patient and Family Engagement Learning and Action Network;

• I remain involved with the National Kidney Foundation of Illinois (NKFI); I will be delivering the keynote address December 2 in Champaign for their seminar entitled, “Living With Kidney Disease and Transplantation;”

• I served a two-year term as the ESRD (End-Stage Renal Disease) patient representative for the state of Illinois. Yeah, the whole freakin' state. While largely a ceremonial position, the title allowed me in the front door at many dialysis clinics throughout the state, where I got to meet and talk to dialysis patients of all stripes;

• I completed the training to become an ambassador for Gift of Hope, the organ and tissue donation network for Illinois and northwest Indiana;

• I'm the acting secretary for my local NKFI Champaign kidney disease and transplantation support group,

• And, of course, when time, topic and energy combine, I still maintain this blog, which played a major role in allowing me to win the Robert Felter Memorial Award from The Renal Network in 2011 for outreach and information to the kidney community.

I say all this not to strain my shoulder by patting myself on the back. It's just that sometimes when you're running the race, you don't stop to notice how far you've traveled. I really had no idea about how many renal-related activities I was and am involved with until I took time out to write them down.

I still prefer the personal touch myself. Over the past five years or so, I've become sort of Kid Kidney, medical advisor to friends and acquaintances far and wide. Many of my younger years were spent with people who rocked hard and partied harder, and it seems all our bodies are breaking down about the same time. 

I'll bet I field at least three calls or messages a month from old buddies, people they've referred, even total strangers, who have just been diagnosed with some stage of kidney disease and want to talk about dialysis and transplant options. "They're just scared," comes the usual explanation. "They know you've been there before." I'm honored by their trust. I always advocate peritoneal dialysis (PD), the option that saved my life.

Of course, that option is not always available. Not long ago I received a call from a dialysis nurse I know. She had a patient – we'll call her Sally – who was on the verge of ending her hemodialysis treatments. She lived alone, and she had grown tired of the draining three-times-weekly clinic visits, securing transportation, the physical and emotional highs and lows. She was ready to pack it in. "Could you just come and talk to her?" the nurse asked.

What the heck could I tell her? But I met Sally during her next dialysis treatment. "I'm not here to tell you what to do," I began. "I just wanted to meet you and talk." 

Sally said she couldn't do PD because she couldn't handle the equipment and heavy boxes of fluids by herself. She was retired, and tired, and just didn't see any future for herself. We talked for 30 minutes or so; actually, I probably did most of the talking. As I left I handed her my business card and invited her to attend one of our monthly support group get-togethers. I left feeling like I had accomplished nothing whatsoever.

Two days later, I received a call from the dialysis nurse. "What did you say to Sally?" she asked enthusiastically. "The whole session, she kept saying, 'Jim said this,' and 'Jim said that.' She seemed like a totally different person."

I'll never get board of meetings like those.

Friday, October 27, 2017

Yet ANOTHER Advantage of Kidney Transplants – Making New Friends!

My budding bud, Wayne: Sox and Tigers fans, united by kidneys!
At this age I'm not accustomed to getting all giddy over the making of a new friend. That's typically the province of grade-school boys at their first Cub Scout meeting. However, I recently forged a new acquaintance, and I've got to tell you: I'm pretty jazzed about it.

Meet Wayne Meyer II (says Jimmy McFarlin III), baseball coach for small-town Le Roy Junior/Senior High School ("Home of the Panthers") about a half-hour drive from where I live. Now, if Wayne was only a baseball coach and former player, that surely would be enough to curry my excitement: as anyone who knows me will attest, I am an absolute geekazoid when it comes to America's (First, Last and Always) Pastime. For my birthday in June, the only present I really asked for – and received, thankfully – was the commemorative bobblehead of Detroit Tigers righthander Michael Fulmer, the 2016 American League Rookie of the Year. 

What does that say about me?

Anyway, I feel pretty confident that Wayne and I will have a lot to talk about going forward, which is important after the getting-to-know-you period has subsided. But here's the kicker: this tall, extremely healthy-looking man is, like me, a kidney transplant recipient!

Small (Wayne's) World, ain't it?

He and I met in the usual way: standing in line for tests at a hospital laboratory office. I was in line behind Wayne, and regardless of what all those signs say about patient privacy and HIPAA regulations, you cannot possibly whisper softly enough at the check-in desk to avoid being overheard by everyone in a small waiting room. 

He answered all the same medical questions I have been asked at that desk at least once a month for the last six years. I was so familiar with them, I knew the basics of Wayne's condition before he ever turned around to face me.

"How long ago was your transplant?" I asked him.

Came to find out he was a "newbie." He underwent successful transplant surgery on Dec. 3, 2016, and, like I did the first year or so, has to come to the hospital every week for blood tests. The transplant team wants to make sure your foreign "tenant" is making itself comfortable in its new home. For Wayne, that means making the 70-mile round trip from Le Roy every seven days. 

I learned that not only do we share the same local nephrologist, the wise and compassionate Dr. Abdel-Moneim Attia, but we had our surgeries at the same hospital, Barnes-Jewish in St. Louis. We were like renal relatives! Kidney cousins! Since our lab schedules were certain to dovetail, I invited him out to coffee at some later date. To my great delight, he accepted.
My favorite birthday gift. Is something wrong with me?

Weeks later, at an Einstein Bagels restaurant in the shadow of the hospital, Wayne and I got better acquainted. It's fascinating to me how many different ways people come to the point of needing a kidney transplant. In his case, he was actually born with only one kidney! 

Wayne said he was never made aware of it – and since he was a young, healthy, athletic fellow, who would think to look? – until his overworked organ began wearing out. "I had the kidney of a 90-year-old man," he told me.

In 2015, Old Man Kidney decided it had labored long enough. "I started feeling sick," he recalls. "I powered through the end of the school year, and the baseball season, of course, but my feet started to swell. My energy went way down." By the time his wife, Victoria, finally convinced him to go to the hospital, "I was struggling," he admits. "I needed to know what was going on, but I was scared to find out."

Not only did Attia calm and encourage him, but he also made a prediction. "Dr. Attia said from the get-go, 'a year and a half, two years,'" until he received a transplant, Wayne says, "but everything from Barnes-Jewish said it was going to be at least a three- to four-year wait. But Dr. Attia knew what he was doing. He called it from the first time he met me when I was hospitalized."

Wayne spent that year-and-a-half wait on peritoneal dialysis – just like me! – and dialyzed at home with his wife's valiant assistance. "The quality of life did not change much at all," he says. "That's what made the transition so much easier." 

Beyond the steadfast support of Victoria and their two sons, Trey and Colin, the outpouring of concern and care from his tiny town was overwhelming, he says. Clearly, LeRoy adores its high school baseball coach and his family. 

"Some guys at school organized fundraisers to help cover medical expenses," Wayne says. "It seemed like everybody knew about it. I still get people from around town, even other towns, asking me how I'm doing. People who I had no idea knew anything."

And how is he doing? "I feel great," he beams. "Never had a sick day because of it. My energy level is great, though I'm not in shape like I used to be."

None of us are, Coach. Although I'll bet his superior conditioning played a big part in his recovery and present state of health.

His health and happiness come tinged with just a touch of regret, however. Wayne doesn't know who his kidney donor was, but "I do know the kidney was supposed to go to a family member, and for whatever reason it didn't work out," he says. "It's an odd feeling, knowing that it was designated for someone within the donor's family and I ended up getting it. It's kind of a touchy situation. It's one of those cases where you're excited, but you still feel bad." 

Of course, we also talked a lot of baseball. He is a Chicago White Sox fan, but he's such a nice guy that I'm willing to forgive that misguided life decision.

Wayne has invited me to speak to his English class, which will happen in the very near future. I'm so excited! I love talking to young people about the power and passion words can carry, and the remarkable career opportunities I've enjoyed from being able to write good.

Uh, well, I mean. (Just wanted to see if you were paying attention.)

I think the hardest part will be not spending the entire class time talking about our transplants. For both Mr. Meyer and me, it's been an education.

Thursday, September 14, 2017

She's His Wife, and Now She's His Life: A Transplant Tale in Texas

After Sept. 14, Angela and Josh Will be Even Closer Than in This Photo Booth.
It is by no means a stretch of the imagination to say that today – Thursday, Sept. 14, 2017 – is the most important day in the marriage of Angela DeLa Bullard and Josh Bailey. More important, even, than their wedding day.

A life-changing day.

In all likelihood, a life saving day.

For today is the day that Angela is donating one of her kidneys to her beloved husband in Austin, Texas. Josh has experienced the miracle of a kidney transplant once before, but last November he received the soul-crushing report that his adopted organ from 13 years ago was functioning at only about 12 percent of capacity, and dropping fast. (Did you know that your kidneys, marvelous examples of God's handiwork that they are, still can serve your body quite adequately at 60 percent?)

Since Thanksgiving of last year, Josh has been on dialysis three times a week while continuing to work and lead a relatively normal life. And believe me, folks, that ain't easy.

After months of uncertainty trying to coordinate insurance and other issues, last April the couple began their search for a new donor. And just two months later, they received the miraculous news that  Angela was a match!

Now this is a rare and wonderful thing indeed, and as any believer would tell you, no coincidence or phenomenal stroke of luck. The Almighty's hand is clearly doing its thing here.

When my time came to look for a donor, my wife, Karen, refused to get tested. She employed logic over love. "If I get tested and I'm a match," she reasoned, "who's going to take care of you? I couldn't. We'd both be laid up recovering at the same time."

Josh, Angela, and Not the Family Pet. 
That's the challenge facing Josh and Angela. "Our original plan was that I would continue to work and be a caregiver for Josh during the first steps of his recovery, but now we will be traveling that path together," she writes. "I am beyond willing to do anything within my ability to aid in making my best friend and partner feel better. As the saying goes, however, time is money."

So they established a Go Fund Me page to help defray the medical bills and living expenses that are sure to mount while they recuperate. Their modest goal was $1,200, just to get them through a month or so, but in this remarkable period of America's generosity that figure has more than doubled and continues to grow. Amazing.
I'm making a donation today. I invite you to join me, but even if you are not so inclined, please consider sharing this post with your social media circles. Here's the link for you to make a contribution: https://www.gofundme.com/joshandangela

Now, I have never met Angela and Josh. Prior to today, I couldn't have picked them out of a photo array. However, we have a friend in common: Josh went to college with my former churchmate and recently repatriated Texan, Dr. Frank Engel. Frank is one of the finest men currently walking the earth, and if he likes Josh and Angela, then so do I.

"You'll notice they only asked for one month's expenses, and they've surpassed that," Frank says. "It helps when you're a swell guy."

And besides, I kind of know how he feels.

God bless you both.

UPDATE: On Sept. 23, 2017, Matt Bailey posted to Facebook: "We are happy to report that 10 days after surgery, Angela and I are back home. We passed the critical phase of our recovery and were released from the hospital with flying colors!

"We both have a long road of healing in front of us, but we're out to the danger zone and feeling better every day. Your thoughts and support had a direct impact on easing our stress during this time We are eternally grateful!"

Monday, January 2, 2017

Finally – A Chance for Some Big (Kidney) Ballin' in Detroit

Yes, yes, I realize – I'm the only man in the photo. But I was willing to make the sacrifice for such a great cause!

Recently I had the opportunity to fulfill a long-held dream. I can't exactly say it was a "bucket list" item, but since I likely would have kicked the bucket long ago without the information and support of agencies like the Kidney Foundation of Michigan, it was a memory I'll cherish forever.









silent auction on cell phone.

Friday, August 19, 2016

Happy to be a Part of 'the Minority Report'

My friend Mike Freeman, Illinois Secretary of State Jesse White, and Me.
Last week was National Minority Organ Donor Awareness Week. For a minute I felt guilty about not writing this post last week to coincide with the occasion. Then it hit me: every week should by Minority Donor Awareness Week.

According to organdonor.gov, of the more than 101,000 people in America waiting for a kidney transplant right now, more than a third of them are African American. So of course, more than a third of all African Americans are signed up to be organ donors, right?

What do you think?

No, seriously – what do you think?

The need for minority donors in this country – Hispanic, Asian and Pacific Islanders, as well as blacks – is more crucial than ever. That's why I'm so proud of the efforts of Illinois Secretary of State Jesse White and his phenomenal "Life Goes On" initiative to register Illinois residents to become organ and tissue donors after – well, you know.

This week, White's office announced that the state's donor registry hit the astonishing mark of six million registrants. "I'm thrilled to see that Illinoisans continue to show their giving spirit by signing up for this lifesaving program," said White, who became personally immersed in organ donation decades ago when his sister needed a kidney, in a prepared statement.

"Our mission is to sign up everyone who is eligible in order to give others a second chance at life and end the waiting list for the approximately 5,000 people statewide."

Despite those impressive sign-up numbers, every year about 500 people in Illinois die waiting for that perfect matching organ. Many of them are African American. 

So what a great honor it was for me to share a dais with White – the longest-serving  Secretary of State in Illinois history and the first black person to hold the office – last week for a Minority Organ Donor Awareness event at Carle Hospital in Champaign, Ill. 

We were joined by my new friend Dave Freeman, who lives in the same complex as I (our building manager introduced us) and is preparing to begin dialysis in hopes of an eventual kidney transplant.

Jesse and Dave were there to plead for the need. I was Exhibit A, the walking, talking success story.

Unlike me, who relishes any opportunity to open my mouth in public, Dave was more than a bit jittery prior to making his remarks. He had included a joke in his short speech and wanted to run it past me:

"When they asked me if I wanted to be an organ and tissue donor, I told them, 'No thank you. I play the trumpet.'"

Crickets. 

"I don't get it," I confessed.

Once he explained it to me – a play on words about musical instruments – I gently suggested he remove the "and tissue" part to put the key words closer together. Dave agreed to try it.

I won't bore you with every word verbatim (much as I'd like to), but this is the bulk of what I said to that hospital audience:

"Ladies and gentlemen, good morning.


"I'm happy and proud to share the podium with our esteemed Secretary of State, who has been such a champion in the field of organ and tissue donation. Thank you, Mr. White, for all you have done and continue to do.

"My name is Jim McFarlin, and I am speaking to you today from beyond the grave.

"Logically, realistically, there is no way I should be standing before you right now. In 2008 I was diagnosed with Stage IV kidney failure, and as many of you may know, the medical types tell you that at Stage V you should be checking your insurance policies and making arrangements.

Talk, talk, talk: Jimbo, the Kidney Crusader
"Now, I'm going to talk about God right here, so if you are not the "religious type" you may wish to tune out for a moment. Because I don't believe you can knowingly come so close to death's door and come away clean and healthy on the other side without having your faith in God renewed.

"I was on dialysis for just over two years – far below the average wait time for a transplant – when a precious little girl, just six years old, collapsed and died on the playground of a brain aneurysm. Her kidney was a perfect match, and in perfect condition. 

"I will forever be grateful to her parents for having the courage and selflessness to think about how their dead child could benefit others at that most devastating time in their lives. My transplant was performed November 18, 2011, and I'm still going strong. Praise God!

"I am Exhibit A for the benefits of organ donation. I am blessed. And I truly believe one of the reasons I'm still around is to encourage and appeal to my brothers and sisters – of all colors – to make the choice to register as an organ and tissue donor.

"High blood pressure and diabetes are two of the leading causes of kidney failure, and you know that black folks lead the league in those statistics. Y'all eating all that pork! 

"But you just know that African Americans are not signing up tp be organ and tissue donors in equal measure. Quite simply, we're not pulling our weight! We're not doing our fair share.

"And while it's true that the races have interchangeable parts, the truth is that tissue matches are just better when transplants occur within ethnic groups – that is, when black patients receive organs from black donors, Hispanics from Hispanics, and so on.

"For about two years I served as the End Stage Renal Disease Patient Representative for the State of Illinois. And while it was largely a ceremonial position, I tried to use it to best advantage. 

"As I traveled around the state, whenever I could I would drop into a dialysis clinic and ask to speak to the patients. And while I learned a lot from them, the takeaway that struck me hardest was that it seemed no matter where I went, the vast majority of patients were the same color as I am. The need for donors is critical.

"Why don't we donate? One reason, I think, is because we believe in all those myths and old wives' tales that just aren't true. Doctors will not let you die on the operating table so they can harvest your organs...you can still have an open casket funeral...organ donation is not against your religion. There is no legitimate excuse.

"So if you really believe that Black Lives Matter – or Asian Lives, or Hispanic Lives, or every life –  here is a positive, nonviolent, selfless way to prove your commitment. Become an organ and tissue donor. Do the right thing. Donate life. Thank you."

And by the way, Dave's edited joke got a big laugh. A good day all the way around.

Sunday, March 13, 2016

Paying My Kidney Forward

An acquaintance of mine, a fellow member of the National Association of Black Journalists Detroit chapter of which I am proud to belong, contacted me via private online message not long ago.

(I won't mention him by name, so I can talk about him.)

He began with the obligatory courtesies: "We have met a few times in Detroit...I'm not sure you remember me but...." Then just about the moment I mentally connected his name with a face, he smacked me with an emotional haymaker.

"I have been reading your blog, Just Kidneying, and it is hitting me right on time: I just found out this week that I am going to have to go on dialysis and be put on an organ donor list."

Bam.

Pow.

Oh, the pain.

I feel you, brother.

In that instant, it all came flooding back. The fear. The anger. The disbelief. The "WHAT THE HELL! HOW CAN THIS BE?" Almost all of Kübler-Ross's five stages, welling up inside me at the same time. Feelings I thought I had long ago suppressed.

Everything but acceptance.

"I am in the middle of having to make the decision about PD (Peritoneal Dialysis) or Hemo (home or in-center)," he wrote. "I am looking for information, support, prayers, etc. Any direction you could provide would be greatly appreciated. Thanks."

The prayers came instantaneously. The advice was dispatched minutes later.

If you have read this space at all in the past, you know I am a vocal and enthusiastic supporter of PD, the type of dialysis I opted for and applied to myself every day for nearly three years. I believe it's less invasive, gentler to your system, as effective as other dialysis systems and doesn't require you to be on time for in-clinic treatments at least three times every week. (Really, who can do that?)

I passed my insights along to my friend and received a response a few weeks later.

"I am three days away from getting my catheter," he wrote. "Since I first reached out, we decided on PD over hemodialysis."

He listened to me! My wife doesn't even do that!

"I am still not quite sure what to expect, and I wish there was anything, and I mean anything else, I could do not to face this, but I have to go forward. Thanks for your support."

"Have to go forward." I heard that, and I totally get that. I mean, what other choice do you have?

After more than four years with a successful kidney transplant, I often feel far removed from the trenches of the day-to-day renal wars. I recently resigned my position as ESRD (End-Stage Renal Disease) Patient Representative for the State of Illinois and recommended a current dialysis patient, a man I know to be a leader and activist, as my replacement. Kidney patients deserve someone who's on the front lines of their struggle, I figured.

However, the unexpected message from a confused Detroiter in need, who reached out to me for no other reason than that he knew my story, reminded me that I still have value in this area, a role to play as a reference point. I'm no nephrologist or kidney disease researcher, but I have been through the darkness and pain and come out on the other side. I'm reminded of an advertising slogan from many decades past:

"Ask the man who owns one."

Last week I got a call from a dear friend, like me a Detroit expatriate. Doctors have discovered a tumor the size of a football in her midsection. Worse yet, as it grew it apparently pressed against the artery that supplies blood to one of her kidneys, damaging it severely.

After we talked about her condition, she had a battery of questions for me about kidneys and their function.

Who am I, the kidney answer man?

To some people, I guess I am.

Happy to help.