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| Alan and Gloria, on his 70th birthday. |
It's kidney disease as Toy Story and the blogger as Buzz Lightyear: from dialysis to transplantation – and beyond!
Wednesday, November 16, 2022
I Really Give a Whitt About This Guy; I’m Hoping That You Will, Too
Monday, April 12, 2021
It May Not Be the Bee's Knees, But I Hope My Knee Will 'Bees' Better
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| This is about how my knee feels now. Every day. |
• This will be my first major operation since my kidney transplant at Barnes-Jewish Hospital in St. Louis on November 18, 2011. (Great Googly-Moogly! That was 10 years ago! I just realized that. Suppose I should think about doing some sort of anniversary tribute later this year.) And to tell you the truth, I really don't know how I feel about this week's procedure.
• My surgery initially was scheduled for March 2020, about a week before the world as we knew it flipped upside down and corona became way more than the name of an imported beer. My joint replacement was canceled due to a sudden, urgent need for hospital beds. Then it was aborted a second time in November when the virus spiked again. As a result, I have been in relentless, agonizing leg pain for more than a year, Biofreeze and IcyHot my constant sidekicks.
I have not been a happy cowboy.
As another result, I find myself approaching this week's operation with a feeling of...well, really, no feeling at all. I'm not excited or anxious or nervous or relieved. I was bitter for quite some time over the cancellations and the knowledge that my suffering continued through no fault of my own. But when you've been in pain day after day for months, it sadly becomes part of your normal existence. You learn to live with it. If you can call that living.
(Many deep thanks to Danny McFarlin –– absolutely no relation, unless his family once owned mine –– the physician's assistant who kept me reasonably sane between surgical disappointments with a series of cortisone injections in my knee. He really gave me a leg up.
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| My Surgeon: 'No-Pain Bane?' |
And while I'm told the pain will be worse after the procedure, at least initially, at this point it's all relative. Besides, fool me twice, shame on everybody. When I'm actually on the gurney with an IV in my arm and being wheeled into the OR, then I'll know it's really going to happen. Until then, I'm keeping my emotions on lockdown.
• The orthopedic surgeon performing my procedure (a total left knee arthroplasty) is one Dr. Robert Bane, who by all accounts is the Dr. Kildare of east central Illinois. I am not exaggerating when I tell you every single person who's asked about my operation has broken into a broad, knowing smile when I answer, "Doctor Bane," followed immediately by, "He's the best."
OH! I misspoke. One woman at my church replied, "I tried to get Dr. Bane, but I couldn't get onto his calendar. (Pause.) He's the best, you know."
Even other doctors praise his holy name, which is rare indeed. Last week my cardiologist broke into a broad smile when Bane's name came up. "You're in good hands," he reassured. Ironically, I have yet to meet him: we conversed briefly via Zoom many months ago, but due to COVID I will not meet the man in person who's going to cut into my flesh until I'm on the table preparing for the anesthesia. I'm in the hands of a near-total stranger. He is, quite literally, the Bane of my existence.
I am absolutely positive I am not the first one to come up with that.
• I know times change over the course of a decade, but I don't remember ever jumping through as many pre-surgical hoops as I have for this procedure. I have had a complete pre-op physical, new X-rays, bone density screening, blood pressure monitoring, a consultation with my cardiologist. Bathe with a special soap the night before and the day of surgery. Sleep on clean sheets. Stop taking vitamins and all supplements. And, of course, the obligatory COVID-19 test.
Good news: here you can take the COVID test without having to leave your car. Bad news: It entails pulling into a line as long as the ones giving out free food these days and enduring what seems like a drawn-out, confusing and disorganized process. Very good news: The Carle system requires patients to simply run a Q-Tip around both nostrils, rather than jamming a stick past the eye and into the brain. Extremely good news: I tested negative, so we can continue to communicate.
• I suddenly came to realize one reason so many pre-op tests are required is because I'm not as young as my brain keeps telling me I am. I was blown away by the number of contemporaries who responded to my Facebook announcement of impending knee replacement with comments like, "Had mine done years ago," "Had both of mine done" or "You won't regret it." One friend even sent me a book of healing techniques after surgeries! Good Lord – my friends are getting so OLD! So thankful I'm retaining my youth.
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| My knee, without a scar. For posterity. |
• I was grateful that my pastor, Herb Coates, specifically mentioned me and my upcoming surgery during his congregational prayer last Sunday. Prayers are always welcomed. However, since I was manning the Welcome Desk next to the front door after the service, I was an easy target for every parishioner who wanted to inquire about the operation –– which seemed like every parishioner. I swear, I think some of them seemed to care more about my surgery than I do. Is that a good thing?
• I am also so, so grateful for the advancements in medical science. Knee replacements are commonplace now but practically unheard of in America until the 1970s. I think of my Aunt Carrie in Palmetto, Ga., God rest her soul, who made her living by cleaning the local movie theater. In those days you were lucky to have any job, so she worked on her hands and knees, picking up candy and all manner of filth brooms couldn't reach, well into her 80s. What unbearable pain she, and so many other laborers, must have endured!
I'll think of you Wednesday, Auntie. Just before the lights go out.
Thursday, November 5, 2020
Can Kidneys Create Comedy? I'm Trying to 'B Positive'
Hey, this is a joke, right?
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| Transplant Pals. (by Pamela Littky, Warner Bros.) |
Friday, October 27, 2017
Yet ANOTHER Advantage of Kidney Transplants – New Friends!
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| My budding bud, Wayne: Sox and Tigers fans, united by kidneys! |
Meet Wayne Meyer II (says Jimmy McFarlin III), baseball coach for small-town Le Roy Junior/Senior High School ("Home of the Panthers") about a half-hour drive from where I live. Now, if Wayne was only a baseball coach and former player, that surely would be enough to curry my excitement: as anyone who knows me will attest, I am an absolute geekazoid when it comes to America's (First, Last and Always) Pastime. For my birthday in June, the only present I really asked for – and received, thankfully – was the commemorative bobblehead of Detroit Tigers righthander Michael Fulmer, the 2016 American League Rookie of the Year.
What does that say about me?
Anyway, I feel pretty confident that Wayne and I will have a lot to talk about going forward, which is important after the getting-to-know-you period has subsided. But here's the kicker: this tall, extremely healthy-looking man is, like me, a kidney transplant recipient!
Small (Wayne's) World, ain't it?
He and I met in the usual way: standing in line for tests at a hospital laboratory office. I was in line behind Wayne, and regardless of what all those signs say about patient privacy and HIPAA regulations, you cannot possibly whisper softly enough at the check-in desk to avoid being overheard by everyone in a small waiting room.
He answered all the same medical questions I have been asked at that desk at least once a month for the last six years. I was so familiar with them, I knew the basics of Wayne's condition before he ever turned around to face me.
"How long ago was your transplant?" I asked him.
Came to find out he was a "newbie." He underwent successful transplant surgery on Dec. 3, 2016, and, like I did the first year or so, has to come to the hospital every week for blood tests. The transplant team wants to make sure your foreign "tenant" is making itself comfortable in its new home. For Wayne, that means making the 70-mile round trip from Le Roy every seven days.
I learned that not only do we share the same local nephrologist, the wise and compassionate Dr. Abdel-Moneim Attia, but we had our surgeries at the same hospital, Barnes-Jewish in St. Louis. We were like renal relatives! Kidney cousins! Since our lab schedules were certain to dovetail, I invited him out to coffee at some later date. To my great delight, he accepted.
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| My favorite birthday gift. Is something wrong with me? |
Weeks later, at an Einstein Bagels restaurant in the shadow of the hospital, Wayne and I got better acquainted. It's fascinating to me how many different ways people come to the point of needing a kidney transplant. In his case, he was actually born with only one kidney!
Wayne said he was never made aware of it – and since he was a young, healthy, athletic fellow, who would think to look? – until his overworked organ began wearing out. "I had the kidney of a 90-year-old man," he told me.
In 2015, Old Man Kidney decided it had labored long enough. "I started feeling sick," he recalls. "I powered through the end of the school year, and the baseball season, of course, but my feet started to swell. My energy went way down." By the time his wife, Victoria, finally convinced him to go to the hospital, "I was struggling," he admits. "I needed to know what was going on, but I was scared to find out."
Not only did Attia calm and encourage him, but he also made a prediction. "Dr. Attia said from the get-go, 'a year and a half, two years,'" until he received a transplant, Wayne says, "but everything from Barnes-Jewish said it was going to be at least a three- to four-year wait. But Dr. Attia knew what he was doing. He called it from the first time he met me when I was hospitalized."
Wayne spent that year-and-a-half wait on peritoneal dialysis – just like me! – and dialyzed at home with his wife's valiant assistance. "The quality of life did not change much at all," he says. "That's what made the transition so much easier."
Beyond the steadfast support of Victoria and their two sons, Trey and Colin, the outpouring of concern and care from his tiny town was overwhelming, he says. Clearly, LeRoy adores its high school baseball coach and his family.
"Some guys at school organized fundraisers to help cover medical expenses," Wayne says. "It seemed like everybody knew about it. I still get people from around town, even other towns, asking me how I'm doing. People who I had no idea knew anything."
And how is he doing? "I feel great," he beams. "Never had a sick day because of it. My energy level is great, though I'm not in shape like I used to be."
None of us are, Coach. Although I'll bet his superior conditioning played a big part in his recovery and present state of health.
His health and happiness come tinged with just a touch of regret, however. Wayne doesn't know who his kidney donor was, but "I do know the kidney was supposed to go to a family member, and for whatever reason it didn't work out," he says. "It's an odd feeling, knowing that it was designated for someone within the donor's family and I ended up getting it. It's kind of a touchy situation. It's one of those cases where you're excited, but you still feel bad."
Of course, we also talked a lot of baseball. He is a Chicago White Sox fan, but he's such a nice guy that I'm willing to forgive that misguided life decision.
Wayne has invited me to speak to his English class, which will happen in the very near future. I'm so excited! I love talking to young people about the power and passion words can carry, and the remarkable career opportunities I've enjoyed from being able to write good.
Uh, well, I mean. (Just wanted to see if you were paying attention.)
I think the hardest part will be not spending the entire class time talking about our transplants. For both Mr. Meyer and me, it's been an education.
Thursday, December 31, 2015
HAPPY NEW YEAR, CHEYENNE! (Sorry About Missing Your Birthday)
It happened to me last month as the result of a single, four-word midday text from my amazing Bewee (Best Wife Ever), Karen.
"Happy Transplant Day, Darling!" it read.
Holy dialysis, Batman.
November marked the fourth anniversary of the organ transplant that undeniably saved my life, the introduction of a kidney that was described as "near perfect" by the surgeon who performed the operation on my failing body.
And until I saw Karen's text message, I'd completely forgotten. Cheyenne's tenth birthday, her fourth inside of me, a true modern-day miracle if ever there was, and the anniversary just slipped my mind.
What does that say about me?
This is the photo I posted on Facebook that week to observe #TBT, or Throwback Thursday:
It's one of the last pictures of me with the two most important people in my life. It was taken at the going-away party for my mother, Caribell, and father, the original "Mac" McFarlin, from the retirement home where they lived for several years before moving home to Georgia and, eventually, going home.
Had I been thinking or retained even an ounce of memory, however, this is the personal history photo I should have displayed:
It's one of the first pictures taken of me and the lovely Bewee in the recovery area of Barnes-Jewish Hospital in St. Louis after I emerged from the dense fog of anesthesia with a nearly-new little transplanted kidney. (Did you know that if a child's organ is sewn into an adult body it will increase in size by itself to accommodate the needs of its larger host? Somebody try to tell me there's no God!)
Yet now, four years later and feeling great, with outstanding monthly lab results and an unrestricted diet, I seem to have kicked my kid kidney to the curb emotionally.
Am I ungrateful? Unappreciative? Have I begun taking my unbelievable blessing for granted?
Actually, I think it's just the opposite.
Ever since my 2011 transplant, and the arduous recovery and constant monitoring that followed, I believe my life dialed up to a sharper focus. I was so happy to be off years of daily dialysis, and I heard myself being thankful for what may seem like the smallest things – even going to the bathroom to pee, knowing that there are so many patients on dialysis who cannot.
I remember reading that Jack Benny, the late, great comedian of the '40s-'60s, used to drive his friends crazy extolling the wonders of the most mundane life events. "You know," Benny would enthuse, "that may have been the greatest ham sandwich I have ever tasted. The ham was sliced just right. And the cheese! My goodness!" That's how I felt, and still feel today: everything is a wonder.
The sky is a little bluer, the air just a bit sweeter. And as I weave through the renal community and meet so many people who are desperate for a kidney transplant or faring poorly on dialysis, my blessings leap into focus once again.
Whenever Cheyenne causes me a bit of sharp or prolonged pain – she's only 10, after all, and adopted, so she does become defiant from time to time (fellow transplant survivors, does this happen to you?) – I'm reminded that her stay is not guaranteed, or necessarily permanent. For any reason, or no reason at all, she could decide one day to reject me and just stop working.
So while I may not think about my transplant as much as I did three or four years ago, I do think about it every single day, whether gobbling down my handfuls of pills, monitoring my vital signs or remembering to squeeze in some exercise. However, as in most relationships, it's not enough to just think about how much your beloved means to you. You've got to express it as well.
Hey, I'm really forgetful, and I am sorry.
Happy Belated Birthday, Cheyenne. And Happy New Year, too.
Sunday, March 29, 2015
Chain, Chain, Chain – Chain of Cool
I awakened to the early-morning news show to see this inspiring story of a dozen people in and around San Francisco – all strangers to each other – who helped make medical history at California Pacific Medical Center: They formed the largest "transplant chain" ever on the West Coast, a six-way exchange of kidneys.
For those of you unfamiliar with this still relatively new process, typically a person donates his or her kidney to a stranger who is a blood type and tissue match for the organ. In turn, the recipient has a relative or friend donate a kidney to another stranger in need, and (like the old TV commercial) so on and so on and so on.
There have been such chains assembled on the Left Coast before, of course, but none that ultimately gave life to six renal patients desperately in need of a transplant.
In the CBS This Morning piece, the organ donors and recipients met in person for the first time. Bring your Kleenex.
Zully Broussard, the woman who initiated the donor chain, lost both her husband and a son to cancer. She did not donate her kidney to benefit any particular person. "I just wanted them to have that quality of life," she says. "I want their loved ones to know that they're going to be around."
Oh, heck – why just talk about it? Why don't you watch this report from CBS correspondent Carter Evans for yourself?
Thursday, December 25, 2014
Giving Thanks for (Pre-) Christmas Miracles
The introduction says the publication was created "to inspire hope for End-Stage Renal Disease (ESRD) patients, their family members and caregivers...to motivate and empower ESRD patients to explore all treatment modality options, including kidney transplant." In this time when we gather together to give thanks for our families and celebrate the birth of Jesus Christ, I thought it might be nice to celebrate some rebirths as well. That's what a kidney transplant really is, you know – a rebirth, a rejuvenation, a second chance at life. A second chance to be with your family and give thanks for many more Christmases to come.
Here are just a few real stories from Your Life, Your Choice. (Because reprint rights are so hard to obtain during Christmas week, some names have been changed here. The emotions have been left completely intact.)
"Hello! I'm a three-year kidney transplant recipient and am feeling just wonderful! My name is Carole and I live near Harrisburg, Pa. I had reflux disease at birth culminating in ESRD when I was in my 60s.
"I remember very clearly when I faced the decision of whether to remain on peritoneal home dialysis or receive a kidney transplant. I was on the dialysis machine ten hours every night, seven days a week. It was a difficult time for both my husband and me, but we depended on our faith in God to see us through. I had an awesome personal relationship with Him, so when transplant was needed I was on solid ground with my faith and trusted in the Lord to help us."My energy level is way up and I sleep so well at night. It's great to be able to eat whatever I want with very few restrictions. Today I look in the mirror and my skin tone is back to normal. Wow! It just doesn't get any better than that for me.
"I wrote a memoir about my journey through renal failure and dialysis to a kidney transplant. My story is honestly written (through my darkest days) with my personal thoughts and feelings in journal entries, and it's called Transplanted to Better Health. For more information, please check out my website: http://transplantedtobetterhealth.weebly.com/.
"A few months after I started dialysis, the staff asked me if I wanted to be listed for a transplant. I was a little concerned about my age – 77 – but I said yes and did everything they asked. My wife didn't think they would give a kidney to someone my age. The people at the transplant center were wonderful, they treated us like family. The first call didn't work out, but two weeks later I had a second call: a young girl had donated her organs and I was given her kidney.Wednesday, December 10, 2014
Give the Gift of a Kidney This Holiday Season
Or for that matter, life itself?
This could be an appeal to you, Dear Reader, to become an organ donor. But knowing you I'm sure you've done that already.
Instead, you may remember earlier this year I introduced you here to my dear friend Lana Schmidt, one of America's great kidney crusaders and a woman badly in need of a kidney herself. (Look up "Lana Needs Your Love...and a Little Bit of Your Money" from May 25 on this blog.)
In the 12 years since a rare disease called Goodpasture's syndrome robbed her of her kidney function, Lana has been on every form of dialysis known to man. And as anyone who's been through it will tell you, getting dialysis three or more times a week, every week, can exact a tremendous toll on one's body.
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| Lana Schmidt, on a Kidney Crusade. |
Lana is prepared, mentally and emotionally, for the kidney transplant that will dramatically improve her day-to-day living. Physically? That's the catch. She has undergone so many blood transfusions over the years that the antibodies in her system likely will reject any foreign visitor like a healthy new kidney.
The good news: there is a surgeon at the University of Illinois Chicago, Dr. Enrico Benedetti, who is willing to perform Lana's transplant with the aid of a drug called Soliris. The drug, which will block the antibodies and should allow her body to accept the kidney, has been used successfully on highly sensitized transplant candidates in clinical trials. It's estimated that one out of every three dialysis patients are similarly sensitized to transplants and could benefit greatly from this drug.
The bad, really bad, disheartening news: It will cost approximately (deep breath here) $110,000 to administer the series of Soliris treatments Lana needs prior to her transplant, and Medicare won't cover the cost because it and the FDA have approved the drug only to treat rare blood and kidney diseases. Gack.
She has appealed to her congressman and other governmental officials – no help – and pleaded with the maker of Soliris, Alexion Pharmaceuticals, who says its hands are tied. They claim they can't give free patient support with their drug for uses other than those approved by the FDA. It's a kidney Catch-.22.
Now, this is one resourceful lady. It was Lana Schmidt who had the genius moment to reach out to the nursing program at her local college and solicit students to assist her with her home dialysis treatments, giving them hands-on experience while making her daily burden easier. But Lana has run out of bright ideas for this challenge.
Now she feels she has no other option than to raise the money herself, or give up any hope of a lifesaving transplant.
Lana says she needs to set up 501c(3) tax-exempt status to collect the funds, but even that process costs about $400 she doesn't have. (Being sick for a dozen years ain't cheap, folks.) If she can't find the money to file the paperwork herself, she's hoping that an existing nonprofit group – maybe one with pro-kidney leanings – might see fit to take on her short-term cause under its umbrella.
She has even developed a text-message marketing campaign she calls "Tag, You're It!" to help spread the word about organ donation in general and her plight in particular (I told you she was resourceful). She hopes it might catch viral fire in the same way The Ice Bucket Challenge became a worldwide phenomenon earlier this year for ALS.
What she needs now, Lana figures, is to attract the interest of someone like Illinois Secretary of State Jesse White, a longtime advocate and spokesman for organ donation, or an organization such as the National Kidney Foundation of Illinois or Gift of Hope to partner with her in the effort. Whaddaya think? Anybody out there know somebody who knows somebody who might get involved?
Look at it this way: If Lana could get 10,000 people to donate $11 each, she could reach her goal. It's not impossible, or insurmountable. Even raising the 400 bucks to file the 501c(3) would be a great help.
For more information about Lana, or to make a donation, visit her website at www.lanakidneytransplant.com. She's an amazing lady, and she can use our help.
And While We're Thinking About Others: When you hit your knees tonight, I'd like to ask you to ask God to bless two other good people as well.
One is my dear friend Dave, whom I've never met. He's the cousin of one of my former editors, he lives in Idaho and we are brothers through bad kidneys who "met" by this blog.
He's been on in-center dialysis many years, and last week the technicians told him they could not perform his regular treatment: his veins have built up so much scar tissue from frequent injections that they could not gain access.
If you want to terrify someone who needs dialysis three times a week in order to live, that could do it.
Ultimately, a doctor performed an angioplasty on two spots in his shoulder and ordered special balloons that he'll place into Dave's veins in an attempt to open them up. If that fails, they may have to insert a stint. Either way, it's scary business and something no dialysis patient should have to face on top of all his other challenges. Pray for him, please.
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| Lisa Goich Andreadis. |
Some strange malady has been affecting Lisa for well over a month. She's been sick every day. And on her last frantic trip to the ER for assistance – well, let's just say she encountered a level of cruelty and degradation no sick person ever should have to face from a staff of self-proclaimed medical healers.
I won't go into details here – not my place, not my case – but if she ever writes about it I certainly will reprint it here. For now, please just pray she gets well very soon. The world needs a healthy Lisa.
Sunday, May 25, 2014
Lana Needs Your Love...and a Little of Your Money
When her kidneys failed her a dozen years ago, all of the energy from them must have rerouted to her heart, because it is supersized and passionate. Whenever I begin thinking that I'm doing quite a lot to advocate for prevention of kidney disease, the proper care and feeding of dialysis patients and organ donation, I read or hear about something else Lana is up to and put on my humble pants again.
We met years ago on the board of the Indy-based Renal Network, where we both serve on the Learning Action Network for Region 10 (the state of Illinois) as "patient subject matter experts." I'm fairly certain one of us deserves that "expert" tag.
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| Lana can get a kidney! With your help. |
Feeling the need to assist others based upon what she encountered, she is the co-leader and driving force of the Kidney Patients Support Group of Quincy, Ill., the "Gem City" of west central Illinois, and its sister city across the Mississippi, Hannibal, Mo. She and her writing partner, Patty Purcell, are regular columnist-contributors to the worldwide medical magazine Nephrology News.
Lana sits on the national board of directors for the American Association of Kidney Patients (AAKP). She has traveled to Capitol Hill to raise awareness of renal disease among key policymakers in Congress. Taking advantage of a state-funded home service program, she has partnered with a local college in her area to have nursing students come to her house and assist in connecting her to her NxStage System One hemodialysis machine, easing the daily setup burden for her while providing invaluable hands-on experience for the students.
A one-woman PR agency, she speaks at conferences around the country and last March during National Kidney Awareness Month managed to land two radio interviews, three newspaper articles – including a front-page feature – and a TV station segment in her town revolving around her fight against renal disease. (You can read the text of the TV story here; you can listen to one of the radio interviews here.) She even gave out kidney awareness information alongside her treats to kids in Quincy last Halloween!
Lana Schmidt is a warm, funny and devoted woman, a true believer. And now she needs our help.
Living a relatively healthy life more than a decade after diagnosis, Lana was a dialysis lifer – or so I assumed. I've met many people in the kidney community who are perfectly content to remain on dialysis with no plans whatsoever to seek a kidney transplant. The devil you know, I suppose. But I was very wrong: She is very excited to have a transplant...but there are complications.
After undergoing more than 20 transfusions over the years, Lana has built up so many antibodies in her blood that the chances of finding a perfect kidney match are practically nil. However, she has a found a surgeon, Dr. Enrico Benedetti, chairman of the department of surgery at the University of Illinois Chicago, who plans to administer a drug called Solaris to block the antibodies at the time of transplant so her body won't automatically reject the organ.
This approach has been used successfully with patients receiving a kidney from a live donor. But Lana will be the first person to try the procedure with a deceased donor kidney. And that's the rub.
Because it's an experimental technique, the hospital wants Lana nearby following the transplant so they can monitor her closely. Since Quincy is 300 miles from Chicago, she will be required to stay at the University of Illinois Guest House in Chicago for at least two months post-surgery, and insurance won't cover her stay. The out-of-pocket costs for her transplant will be at least $3,000, and she needs to raise those funds herself.
"Mostly, I am asking for prayers through this journey and that everything works out," she wrote me. "But if you are able to financially support me by donating to help offset those costs, that would be very much appreciated.
"Please forward this to others who may be interested in supporting me in this kidney transplant process."
Well, that's exactly what I'm doing, Lana!
Folks, $3,000 is such a relatively small amount to raise, and if everyone reading this gave just ten bucks we could cover her expenses in no time.
Believe me, it's money well spent. I know as well as anybody how dramatically one's life can change with a successful kidney transplant. And if anyone can pay that blessing forward to benefit others, it's Lana Schmidt.
If you're willing to help, click here to make a donation through PayPal. (Just substitute your email address for mine.) Or, send your checks directly to:
Then, immediately after you donate, please feel very good about yourself.
And thanks.
Friday, July 26, 2013
Walking in the Motor City, Hoping for a Lift – Come Join Me Saturday!
However, although black folks need more organs, we donate fewer after we die. A lot fewer. And nearly every medical study you'll see says an organ from a donor of the same racial or ethnic group has a much better chance of being transplanted successfully and overcoming rejection.
C'mon, brothers and sisters, step up! Do you really want some middle-aged white woman's kidney rumbling around inside you?
(Whaddaya think? "White woman" reference too much? Over the top?)
I'm in Detroit this weekend, making an 800-mile round trip from my current home to my favorite city because this is an issue I care about passionately. I was so blessed: I received my donor kidney from a young African American girl, and some doctors say I'm doing better today than I ever did with my own kidneys. She literally saved my life.
You could save some lives, too.
This Saturday, July 27, I'll be speaking – and walking – at the 16th annual LIFE Walk on Belle Isle, sponsored by the Detroit chapter of MOTTEP (the Minority Organ Tissue Transplant Education Program). The event features a 5K and 10K run in addition to a 5K walk (my mind and heart say "run," but my knees are holding them both hostage in favor of "walk.") The real purpose, however, is to heighten awareness about the critical need for more minorities to consider organ donation.
I hear the goal of Saturday's get-together is to sign up 250 new organ donors. What? I think we can do at least twice that, even though many of those who will attend the LIFE Walk already may have committed to donation. I say 500 new donors! Hey, why not think big?
I'll be joined by some local TV celebs from Channel 7 (WXYZ), meteorologist Keenan Smith and news anchor Glenda Lewis. And I understand that Glenda's mom, Detroit television legend Diana Lewis, may show up as well. (Can't wait to give her a big hug!) And my old friend (whom I haven't seen in years – some friend I am), former U.S. Attorney Jeffrey Collins, will serve as the official Run Marshal.
If you're anywhere near Metro Detroit, come and join me Saturday if you can. Registration opens at 7:30 a.m., the run begins at 8:30 and the walk commences at 9. My goal: To touch your heart and conscience, bring a tear to your eye and make you knock other people over in your rush to sign up as an organ donor.
I promise you three things: It won't hurt when they harvest your organs for donation. You could help eight people or more live fuller, happier lives as your legacy.
And no matter where you end up going, you won't need your body after you leave.
Tuesday, July 2, 2013
EVERYTHING You Wanted to Know About Transplants – But Didn't Know You Wanted to Ask
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| George Lopez (Gavin Bond/TBS) |
What changed his mind? I found out – and you can, too – in the weekend edition of USA Today last week, which featured a Media Planet section entirely devoted to issues surrounding organ transplantation in America.
Beyond what's billed as Lopez's first-ever interview about his transplant, there are stories on:
• How medical and technological advancements are helping to lessen the time spent on the waiting list for a replacement organ;
• A discussion on the future of transplantation with three celebrated medical experts;
• An article on the financial burdens and realities following an organ transplant;
• A first-person feature on snowboarder Chris Klug, who continued to excel at his sport despite a liver transplant, and much more.
It's a truly impressive – and unexpected – collection of stories regarding one of the topics nearest to my heart. (Or more accurately, my kidney.)
Among the things I think I already knew but are always worth repeating are:
• More than 118,000 Americans are waiting for an organ transplant right now;
• Many of them will wait five years or more for the opportunity to receive a replacement organ;
• Thousands of them will die every year as the gap between the need for organs and the number of organs available continues to widen.
And something I didn't know: 40 percent of all transplanted lungs are rejected.
Yow.
This section from Media Planet, an independent content provider, is really worth diving into if you want to know more about the present and future of transplantation. I'm so glad "Sidney Kidney" turned me on to it. (If you don't know, I can't help you.)
You can read the section HERE.
Thursday, April 25, 2013
Funny, You Don't Look (Barnes) Jewish
B-J was, and still is, my kidney transplant center. My wife and I chose it over hospitals in Chicago and other cities for many reasons: its sterling reputation and record for successful transplants primarily, but also because we figured it would be easier and cheaper to get in and out of St. Louis for our many medical appointments and eventual surgery. And, although this is impossible to quantify, we thought the people in the St.L might be nicer and more accommodating as well.
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| Dr. Jason Wellen, right, and Happy Patient |
is the kind of standup guy you'd love to have a beer with – if, of course, you could drink beer right after having a transplant.
So when Barnes-Jewish senior media relations coordinator Anne Bassett and her department asked me if I would contribute a guest blog to the hospital's website in honor of April as National Donate Life Month, what was I going to say? "Hold up, let me think about it?"
I don't know if other transplant recipients are as passionate about increasing the ranks of organ donors as I've become, but by the same token I can't imagine how they couldn't be. A successful transplant is more than even the "gift of life:" it's a life utterly reborn.
And like I say in my post on the Barnes-Jewish website, which I do hope you'll read by clicking here, it's a cause I feel so strongly about – especially for people of color – that I was willing to endure frostbite and the potential loss of body parts earlier this month to sign up potential donors.
My sincere thanks to Anne Bassett and all the extraordinary people at Barnes-Jewish Hospital for the opportunity to invade their online space. They may be residents of the heartland, but they do mighty fine with other organs, too.
Monday, January 14, 2013
Goodbye, My Kidney Cousin
She sent a text message that afternoon. Four words were all that was needed.
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| Gift of Life Organization |
"Hugh Grannum has passed."
They hit me like four sledgehammer blows to the chest.
Hugh Parker Grannum, you see, besides being an award-winning, legendary, trailblazing photojournalist at the Detroit Free Press for more than 37 years prior to his retirement in 2007, felt to me like my kindred spirit because we shared an intimate connection:
We both contracted kidney failure at about the same time, and were on waiting lists for a transplant simultaneously, albeit in different states.
Hugh, 72, was at the Free Press long before I started writing for the rival Detroit News, and he remained there long after I left. We weren't exactly what you'd call bosom buddies during those years, but we knew of each other and were cordial whenever our paths would cross. (Bitter competition between the two daily papers in those days often hampered close friendships.)
But oh, how I admired his work! Hugh's photos consistently captured the essence of humanity, grace and quiet strength. As noted in his obituary, which you can read here, he was extremely mindful to shoot his subjects with dignity, especially African Americans, knowing it may be the only time in their lives they were photographed by a professional. I have worked with a number of very fine photographers over my career, but I always wished Hugh could have embellished one of my stories with his singular magic.
Hugh Grannum just radiated cool. The late, fabled Detroit Mayor Coleman Young, who generally despised anybody who even appeared to have a media connection, maintained an open-door policy with Hugh. Nattily dressed, thoroughly professional, devoted to his art, he was every inch a role model, and after his kidneys began heading south our mutual admiration deepened.
Because of the close timing of our end-stage renal diagnoses and the fact we were both creative black men who worked for Detroit newspapers, our illnesses became closely intertwined. We often were mentioned in the same sentence; the great Freep columnist Rochelle Riley wrote about our mutual transplant needs. I recall one "friendraiser" benefit in Detroit that was held on behalf of us both. Mutual friends would keep me aware of his condition, and I'm certain they did the same with Hugh.
He received his transplant first, in 2010. I sent him a congratulatory card and effusive online best wishes. When I got my Cheyenne in November 2011, I received the same in return. We began speaking on the phone semi-regularly, just checking in and offering encouragement. Then last winter, we finally coordinated my travel plans and his hectic post-retirement schedule in order to meet for dinner.Hugh, his delightful wife Carolyn and I met at Slows, Detroit's hottest barbeque joint, on a snowy, windy night. He was wearing a jaunty winter cap (oh, he could wear some hats) and his stylish little round glasses. We talked and laughed for hours, comparing transplant waiting list stories, hospital tales, surgery sagas and medication inventories. It was a magical, cosmic kind of evening. It's not because he's gone now that I'm saying this, but it was a night I will never forget.
There was a lot more wrong with Hugh than kidney miseries. He was afflicted with leukemia and, like me, still waged a constant battle against hypertension. Yet he seemed so upbeat, so happy, so...healthy that night, so positive in looking forward to his future with Carolyn and his lovely daughter, Blake.
A lot of people say, "I can't believe he's gone," when someone close to them dies, but in this case I mean it. In a very real sense, losing Hugh is like losing a part of my body, a slice of my history. Admittedly, it's a stunning, slap-in-the-face reminder of my own fragility and mortality. Hugh was literally my brother under the skin, and we both had the scars to prove it.
I can't imagine ever forgetting you, my friend. Hugh Grannum and I will be forever joined at the renal artery. Godspeed to you, man, and deepest sympathies to your family and your many, many friends who will remember you long and fondly.
Again, for more about Hugh, here is the obituary from his newspaper home, the Detroit Free Press.

















